Submittable is up and running. Due to the unforeseen technical difficulties we are extending the deadline until Sunday, Sept 22nd at 8pm.

The ODC is offering 42 research opportunities focusing on 34 different rare diseases. This program provides a one-year grant to support research related to a rare disease represented in the 2024 Million Dollar Bike Ride. Number of awards and dollar amounts vary per disease based on fundraising totals by each disease team.

Letter of Interest (LOI) Applications are Due Sunday, September 22nd, 2024 by 8pm ET

To Apply:

1. Please review the Request for Applications (RFA)

2. Complete the Application Form on Submittable.

The MDBR 2024 Pilot Grants are open to the international community holding a faculty‐level appointment at an academic institution or a senior scientific position at a non-profit institution or foundation.

Prior MDBR award recipients must have current and updated project reporting to be eligible for selection.

Research Areas for the 2024 MDBR Grant Program:

1. Adult Polyglucosan Body Disease (APBD)

2. Ataxia-Telangiectasia (A-T)

3. BPAN- A Neurodegeneration with Brain Iron Accumulation Disorder

4. CACNA1A-Related Disorders

5. CADASIL

6. Castleman Disease

7. CDKL5 Deficiency Disorder

8. Choroideremia (CHM)

9. Complex Lymphatic Anomalies (CLA)

10. Congenital Hyperinsulinism (CHI)

11. Congenital Muscular Dystrophy (CMD)

12. Cohen Syndrome (COH)

13. CRB1

14. CSNK2A1

15. CTNNB1

16. Dup15q

17. Dyskeratosis Congenita & Telomere Biology Disorder

18. Fibrous Dysplasia/McCune Albright Syndrome

19. Glut1 Deficiency Syndrome

20. KCNT1

21. Lesch-Nyhan Syndrome (LNS)

22. Lymphangioleiomyomatosis (LAM)

23. Mucopolysaccharidoses (MPS)

24. MPS Gene Spotlight: Mucopolysaccharidosis (MPS I)

25. Neuroendocrine cell Hyperplasia of Infancy (NEHI)

26. Pitt Hopkins Syndrome (PTHS)

27. RASopathies

28. Ring 14

29. SCN2A

30. Schinzel-Giedion Syndrome (SGS)

31. SETBP1 Haploinsufficiency Disorder

32. STXBP1 Encephalopathy

33. SynGAP1

34. TBC1D24

35. ZC4H2